Rachel Orr

My name is Rachel Orr. I am 22 years old and in February 2009 my then 19-year-old brother was diagnosed with a rare type of sarcoma of the bone called Ewing's Sarcoma.

In November 2008 Nathan was playing touch rugby and injured his leg. Over the next month the pain didn't subside and walking became more and more difficult. During our family holiday at Waihi Beach at the beginning of January Mum and Dad took Nathan to the local doctor. She referred them straight to Medex -Tauranga for an ultra sound and x-ray, and that's where our family's cancer journey started.

Nathan was admitted to Waikato Hospital on the 21st January 2009 with a huge lump on his thigh - close to his hip. The night after being admitted he rolled over in bed and his leg broke. The cancer had weakened the right proximal femur such that it was very brittle and the pressure of the tumour forced it to break. The following day - without knowing that the bone was actually broken - Nathan, in excruciating pain, went through a CT scan, MRI and x-ray. Doctors and nurses were moving and twisting his leg to get the scans done. Nathan was diagnosed with cancer two weeks later.

Our first introduction to CanTeen was through Ellen, the AYA Nurse Specialist who came to the meeting with the doctors who told us about Nathan's cancer and the treatment. She was a wonderful support to Nathan and our family and her expertise as a nurse was a comfort when we had so many questions.

Nathan spent a bed ridden three months with a broken leg before chemotherapy had reduced the size of the tumour enough that it could be removed. Being an older sibling I found it incredibly difficult to watch my brother in so much pain for three long months. I lost count of the number of days I sat there wishing I could take his place so he wouldn't have to be in pain anymore.

Cancer, or any long illness for that matter, teaches you how strong you are. Cancer teaches you what you are capable of coping with and it helps you to recognise what is important. As a family we helped each other through the year. Everyone had his or her bad days and that was okay but most of the time we stayed positive. We had a lot of laughs and Nathan's positive attitude and incredible strength kept the rest of the family inspired.

It was an exhausting and scary year but my sister Renae and I wouldn't have been able to do what we did for Nathan without the support of CanTeen. Nathan spent three weeks in hospital in Auckland after the operation and thanks to CanTeen, Renae and I were able to visit him often. The phone cards CanTeen provided allowed Nathan to stay in touch with us from his hospital bed and demand the odd takeaway when hospital food was getting too much!

My first CanTeen camp was a chance for me to get to know others in similar situations to myself. When CanTeeners meet as a group there is an incredible feeling of strength and friendship that only comes when people have been through experiences with young people living with cancer. I was both inspired, and saddened by others' stories. There are so many young people in New Zealand that are affected by cancer and CanTeen is there to support them. I am excited to be part of an organisation that brings other young people hope and happiness and I can only encourage other young people who are put in the horrible situation of being diagnosed with cancer to become part of this fantastic team of people.

Rachel Orr